LifeAlign Blog

Not Everyone Loves Support Groups

It can be enormously helpful to have enough support after getting a cancer diagnosis. That said, many of us just don’t feel like it. Too freaked out to talk to friends and family. Too scared to reach out to strangers. You might think about how to get yourself to reach out when it’s not really your usual path. Sometimes friends and family are not enough, because they say things that don’t feel quite right, even though they are trying to be helpful.

Many of us have images of communities of support. When we first think of support for cancer, we can find ourselves visualizing groups of women sitting in community or hospital-based support groups talking about their experiences with breast cancer. Or there may be images of family members coming to dinner every Sunday night, or friends coming by and calling.

Loss

Loss pervades the cancer experience.

The first loss is that life is never the same again. In the many ways that people live their lives, there is usually a past story, a present of immediate to indeterminate duration, and a future. People may be attempting to remain more in their present experience, and there may be a physical and spiritual truth that there is only the present moment, but people are generally organized around living toward a future, and have a story about where they come from and where they are heading.

Cancer immediately changes this story. The past leads up to this point, and then all future dreams, intermediate and distant come into question. The fact of impermanence, of changeability, of death, becomes stark, real and unavoidable. So there is a loss of perceived certainty of continuity, and there is a loss about unending time to accomplish life goals and realize your dreams.

Waiting for Cancer

Waiting for cancer – you don’t yet have all the information from your body, from tests, from the doctor – you are scared. The medical system is so crowded, so time-crunched, so expensive and so impersonal these days that it is hard to feel that you are being cared for and cared about when you are waiting for medical information. You spend hours, days, weeks waiting for news and dreading what it might be. The waiting is really hard because there is little that you can control. So you wait. Often.

The first waiting comes when you first have a glimmer that something could be wrong. This may come from feeling badly or noticing something out of the ordinary with your body. Or from having a routine office visit and lab test that comes back with an out-of-range result. Any unusual results can lead to another set of exams or lab tests. Each of those tests needs to be scheduled, completed, and the results need to get to your doctor for evaluation and then communicated to you. The period of time between test and result often seems to last forever and be filled with fear, dread and big anxiety. So you wait.

Cancer Changes Everything

Cancer changes everything. At the moment of cancer diagnosis, there is a marker in life, which bookmarks personal time as either Before Cancer or After Cancer.

But before that, there is the in-between time, when you don’t quite know what is happening. You may have experienced troubling symptoms for some time, followed by lab work or medical exams. Or, it may have all started with a routine trip to the doctor – you were told that something seems suspicious or wrong. “How long has this lump been there?” After that, you may have gone through more visits and more tests, several weeks apart.

Workflowy

I think I have finally found the perfect list maker, mind manager, time management helper and personal organizer. I found it online on Mother’s Day. I use it now to manage my work and my home and family. It is simple and relaxing and things are getting done. You can see everything in front of you or you can hide most everything and pretend it isn’t there. Perfect.

I am using it for organizing everything. The Workflowy developer suggests that a good starting point is 5 main lists – Goals, Chore, Project, Thoughts, Links. Each of the lists can have level upon level of nested list. You can have a broad overview of a project, down to the tiniest level of detail. This works for writing a book, planning a wedding, structuring a project, organizing an overseas trip and cleaning up unfinished business.

When I was younger my lists were on paper and always unfinished -
Wednesday

  • Do my laundry
  • Go to France

Equal chance of occurring on a Wednesday in August. Neither happened.